The Face of Lupus

Thanks Michael!

Thanks Michael!

It hurts to squeeze a lemon,

It hurts to brush my hair

I hear you say “just text me”

and the swelling and Pain,

just make me swear &%*#@*#*@!

It hurts to squeeze the toothpaste

My hand’s as crumpled as my hope

Will there ever be cure for Lupus?

Some days it feels a cure would be a rope…

It hurts to pretend to keep up with you,

It hurts to hide the pain from my face

It hurts to know there is so much suffering

As a member of this human race

Sometimes I must share the scary stuff

And remind us both, we are not alone

Cause this Lupus stuff can be a huge life barrier

Worse than a teenager

and his phone.

infusion2The Face of Lupus Thanks you-REAL Survivors, meant to be here!

Not Afraid of the Big Bad Wolf

Wolverines don’t cry alone
Wolverines prefer the pack;
And if the kill is good
The hunger comes back.
Salivation is natural, but there’s no juice in their jowls,
But the passion’s there
So they keep up the prowl.
Sunrise in winter
Is rare when the mercury dips low
Usually fever nags, soars and sours
We celebrate the day the pain will go
Moods like the moon rage high;
Tiptoe around angst, once unknown
And howl at the glory of prednisone
Like a winter coat is shed
A new day of healing rears its head
The ribbons of life’s gift fall free
Beauty overpowers fatigue,
And persists beyond slumbers bed
Autumn smiles, Salmon, winter berries- no bread
Gone are crippling flames of yesterday’s despair
Waste not-be Great FULL!”
Together the pack hunts
for repair.